Steve was a great supporter of CdlS Foundation even before it became a registered charity.  Over the years he raised thousands of pounds to support those people affected by the condition and was a regular attendee, friend and confidante at all of the conferences and family meetings.  He will be greatly missed by all of the Trustees and families and Professionals who dealt with him.  This page has been set up by the Foundation to enable those who knew Steve to show their appreciaion for a cause he greatly loved.   

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