Thanks for taking the time to visit our JustGiving page.

Moya Flynn was born on January 2nd 2013.  After a few weeks
of pale stools and failing to put on much weight, she was diagnosed with a rare condition called Billiary Atresia.  This is where, for unknown reasons, the ducts leaving the liver are blocked or have disintegrated. On Feb 11th she had to undergo a surgery to try loop up a part of her intestine in the hope that the bile from her liver would drain out.  This was unsuccessful and we knew then that she would need a liver transplant within two years.

The best scenario would be to get her to 18mths, let her get all
her vaccinations and have her as strong as possible for the operation but, in true Moya style, (Flynns have no patients!!) she continued to deteriorate.  We had many weeks in our local hospital, a few stays in Our Lady's Hospital for sick children Crumlin.

At the end of May 2013 her Dr in Crumlin said it was time to send
her to Kings college hospital in London to be accessed for transplant list.  We were told we could be there for up to eight days. 

Her father Mark had 16 physical and psychological tests and was
deemed a match for living related donor, and we were told we would not be going home until after transplant as Moyas liver was 'at end of life'. We were given the date of June 28th for living related transplant and she was second on the list for deceased donor. 

On June 22nd Moya woke up and had a small vomit.  Half an
hour later she had a large vomit of blood!.  Her veins were so full
because nothing could pass through the nearly dead liver, that the pressure from the small vomit burst a vein in her esophagus and her tummy was filling with blood.  She was rushed to Pediatric ICU and over the next 6-8 hours they had to give her a breathing tube, a tube with a balloon to stop the bleed and countless other machines to carryout her bodily functions as her body was not able any more.  It was decided that if she made it through the night that the transplant would take place the next day.

The little fighter that she is, was transplanted 10% of her dads
liver on Sunday, June 23rd 2013.

The first thing Mark, her dad asked for when her woke up was how
she was and how was our other son, Cónal, who through all this had been left at home.  It was heart wrenching to watch Moya suffer each day but it was very hard being away from our family for so long.  We thought we were going for a week and in the end we were there for 9 weeks!

Rhys Daniels Trust are a charity who have bought flats and houses
near hospitals throughout the UK. The Daniels family tragically lost two of their own kids.  They had a flat rented for them by Mohammed Al Fayed when they most needed help and they then set up the trust to help others in the same situation.  We used one of they three flats on 2 separate occasions.  It meant that we could bring other family members over for support and so they could see us.  Our son came to stay and was looked after by aunties, uncles and a wonderful Nana.  It just made a very bad situation a little better knowing we could see him everyday.  

The flats were a home from home.  They had everything we needed, washing machine, cooker fridge, microwave, twin bed room, tv, dvd, pull out bed in living room, toys for the kids.  We could cook our own food which helped keep costs down.  Shower whenever suited us, take a
nap, all the things that are impossible when living on a camp bed in a
hospital.

Rhys Daniels have helped hundreds of families from all over Europe
and beyond.  We met people from Greece and Kuwait as well as countless British families and there was another Irish family there both times we were there.  The Trust ask for nothing! The last time we were there the lady who housed us, told us that the charity were in trouble! 

All fundraising will be greatly appreciated so from us to all
involved, THANK YOU!! AND.....GOOD LUCK!