We support everyone affected by ichthyosis to improve their quality of life
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Thanks for taking the time to visit my JustGiving page
This year once again I will be taking part in the VHI Ladies Mini Marathon in Dublin. To raise funds for The Ichthyosis Support Group & also awareness of this rare genetic skin condition. Since the birth of Bobby the ISG have been an invaluable source of comfort and support to us. By raising much needed funds you are helping the ISG continue to offer support to families like ours and also fund research which one day will hopefully result in finding a cure.On your behalf we will also be donating a portion of our offline donations to DEBRA Ireland, a fantastic charity offering support to families affected by the skin condition Epidermolysis Bullosa.Any support at all is greatly appreciated. Vicky xx
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The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.