Amanda Hargreaves

100 Mile Trek

Fundraising for Angelman Syndrome Support Education & Research Trust
£3,925
raised of £2,000 target
Donations cannot currently be made to this page
100 mile non stop trek over the South Downs, 25 June 2017
We help and support UK families to find the best in Angelman Syndrome.

Story

Thanks for taking the time to visit my JustGiving page.

Last year we had a devastating shock when our beautiful daughter Neave was diagnosed with Angelman Syndrome. We were told she won't ever talk, she will have severe learning disabilities meaning she will always need caring for, and probably wouldn't be able to walk. The only silver lining is that people with AS are very happy & always laughing. She brings a smile to everyone's face who meets her & is a complete joy. When she was diagnosed we were directed to ASSERT which is the English charity for AS. They have offered us continued support and connected us with other families helping us to realise we are not alone.

Some friends and I have decided we would set ourselves a challenge to raise some money for this worthy charity which relies totally on donations. The challenge is to complete the walk in one go, 100 miles, from Winchester to Eastbourne, with no sleep. Anything you can give would be greatly appreciated!!!!

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About the charity

Assert is a United Kingdom based support group for those affected by the rare genetic condition Angelman Syndome (AS). A diagnosis of AS will have life changing consequences and we are there to help families cope. We also advise medical and care professionals dealing with this rare condition.

Donation summary

Total raised
£3,925.00
+ £741.25 Gift Aid
Online donations
£3,925.00
Offline donations
£0.00

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