Timperley Boneshakers 2016 Cycling Event

Fundraising for Ehlers-Danlos Support UK
£7,194
raised of £10,000 target
Donations cannot currently be made to this page
Timperley Boneshakers 2016 Cycling Event, 24 September 2017
Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
We educate, inform and raise awareness to support those living with Ehlers-Danlos

Story

Thanks for taking the time to visit Timperley Boneshakers JustGiving page.

Having successfully raised  £76 K since 2009 for various deserving charities this year we will again raising funds for another worthy cause with a Timperley connection. This year some of our cyclists will also be completing other challenges in addition to our September 200 mile main event, hoping to raise a huge amount of money. 

Sophie Needham is the niece of Andy Fardon one of our cyclist’s, and sadly she suffers with Ehlers- Danlos Syndrome. At age 6 weeks Sophie started losing weight. At 6 months she had major gastric surgery.

Age 3 years old she had her third massive operation.

When she was 5 she started school but required special care every day.

She was diagnosed with 2 serious conditions aged 12, POTs and Ehlers Danlos Syndrome - either one would be hard to deal with.Over her life she has been in and out of 4 specialist hospitals in London and Manchester. She has 6 specialist consultants.She takes 12 tablets every single day.She injects herself 3 times a day.What does this add up to?

One very brave young lady who is always smiling! This year our team of 40 cyclists will be participating in a 200 mile personal challenge, pedalling from Timperley, through Cheshire and Shropshire countryside into the borders of Wales staying overnight at Shrewsbury and cycling back to Timperley the following day.

Sophie's chosen charity Ehlers-Danlos Support UK, we hoping to raise plenty of money to help make a difference for people that suffer with this condition.

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About the charity

Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
Ehlers-Danlos Support UK is a registered charity supporting people who suffer from Ehlers-Danlos Syndrome (EDS). EDS UK is here to support people who have EDS, educate those who need to learn more, and raise funds to enable further research and development.

Donation summary

Total raised
£7,193.01
+ £905.75 Gift Aid
Online donations
£5,763.01
Offline donations
£1,430.00

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