My Cousins little lad -  Daffydd Thatcher was born 22 months ago in June 2014 .After 6 months was diagnosed with WEST syndrome - infantile spasms, these spasms have peaks and troughs and are still continuing. In January this year Daffydd was diagnosed with CDKL5 deletion. 

CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. With only 600 Worldwide. 

To help support Daffydd and his incredibly strong parents and family, Thatch and Siobhan, and brothers Tom and Rhys, I ask you all to support me, to support them, so that we can all help find a cure or fund research into controlling side effects. 

I am running the Swansea Half marathon to support them and Daf x