Dave Herniman

Tom's Toms Bungee Jump

Fundraising for MECP2 Duplication UK
£298
raised of £500 target
Donations cannot currently be made to this page
Toms Bungee Jump, 6 September 2017
MECP2 Duplication UK

Verified by JustGiving

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We support MECP2 families enabling them to grow and develop and cope with MECP2

Story

Thanks for taking the time to visit my JustGiving page.

As a 15 year old typical boy who likes to do the normal like play football go out with mates and also video games some people cant experience the same Alfie for example he spends each day of his life battling a horrible disease called the MECP2 duplication syndrome, this is why I would love to help, I know im not going to raise thousands but anything helps and it would be amazing of you can help, any donations received 100% will go directly to charity and will also help me achieve my target. I made a choice that i would do a challenge that makes me struggle (my bungee jump).  If  you would like to read a little more about alfie here it is:

Alfie can not walk or talk, has profound and multiple learning difficulties, suffers from recurrent chest infections and has had two bouts of serious pnuemonia due to a weakend immune system.

 

He can not dress or feed himself, may develop epilepsy, sufferes from severe constipation and reflux, has autisic traits and will almost certainly have a shortened life expectancy.

 

Despite all that he is the most amazing little boy who takes life in his stride, he smiles and laughs and has just learnt how to give hugs. He is an inspirational little boy who just happens to need lots of help along the way .


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About the charity

MECP2 Duplication UK

Verified by JustGiving

RCN SC044781
We are a parent-led charity providing a diverse range of support for families living with MECP2 Duplication Syndrome. Support takes the form of information, advice and social gatherings. We help ease the additional pressures families face. We can help with essential items in the form of grants.

Donation summary

Total raised
£298.00
+ £56.75 Gift Aid
Online donations
£298.00
Offline donations
£0.00

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