Sophie Whitworth

Tracy's The Middle Half page

Fundraising for Duchenne Muscular Dystrophy Trust
£475
raised of £1,000 target
Donations cannot currently be made to this page
The Middle Half, 8 October 2016
Participants: Angela Taylor, Tracy Mellor
Duchenne Muscular Dystrophy Trust

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Story

Thanks for taking the time to visit my JustGiving page.

My mum, Angela Taylor, has run 7 half marathons and is putting me to shame so this year I decided I would run it with her.  She knows a young boy who has DMD and we would really appreciate your support in helping find a way to beat this illness.

Duchenne Muscular Dystrophy is a stinker of a disease. It's the most common fatal genetic disorder to affect children around the world. If you've got it, you can't produce dystrophin, a protein you need to build up your muscles. As a result, every muscle in the body deteriorates. At the moment there is no cure.

The facts about Duchenne are inescapable:

  • Duchenne Muscular Dystrophy is 100% fatal
  • Most kids with it die in their late teens or early twenties
  • Most with it are usually in a wheelchair by the age of 12
  • It leads to respiratory failure, heart failure, and other debilitating orthopaedic complications

One in 3,500 boys is born with it, and in the UK 2,500 kids has it at the moment. In the USA between 400-600 boys are born with it each year. You can have it, no matter where you are or what your ethnic background is. A third of all cases start in the womb, with no warning before the baby is born. Girls can also get Duchenne with around 1% of Duchenne births being female.

Although we know a lot about how Duchenne is caused, current treatments are pretty limited.

Please help us raise money to provide much needed funds to further the research into a cure.  



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About the charity

Duchenne Muscular Dystrophy Trust

Verified by JustGiving

RCN 1120873
The DMD Trust raises funds for research into cures for Duchenne & Becker Muscular Dystrophy. Duchenne is the UK's second most common inherited life-threatening disease.

Donation summary

Total raised
£475.00
Online donations
£475.00
Offline donations
£0.00

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