Story
I'm skydiving in July in honour of my buddy Zayn who is fighting Niemann pick disease. Zayn is only 3 years old.
The money raised is for the Hope for Hollie foundation which is a registered charity that supports individuals with Niemann Pick disease type C by providing grants for specialised equipment & aiding research into finding a cure.
Niemann pick Type C (also known as NPC) is an extremely rare genetic metabolic condition causing a breakdown in the central nervous system. A build up of cholesterol causing structural & functional damage in cells and tissue. The cholesterol accumulates mainly in the liver spleen & brain. Once the neurological side deteriorates the outcome is loss of speech, loss of motor skills, seizures, dementia, they stop swallowing & eventually losing their lives.
Please donate to help children like Zayn!