Our gorgeous son William Thomas Moore was diagnosed with Prader Willi Syndrome at birth. He spent his first 3 weeks in the Special Care Baby Unit at Wrexham Maelor Hospital and was fed through a Nasal Gastric tube till he was 16 weeks old.

Wills currently suffers from low muscle tone but he is a true fighter and just recently started to crawl!! #willpower

He is such a happy little boy and so loved by us all and especially his big brother James.

May is PWS awareness month so we are aiming to raise much needed money for further research into Prader Willi Syndrome.

Myself and a few close friends are not eating any snacks that Wills won't have in the future such as cakes and chocolate, throughout the whole month of May.  Thanks to Rachael, Soraya, Sarah and Colette for doing this with me.

On 27th May Wills and his friends at Stepping Stones Nursery are having a "Go Orange Day". They are all wearing orange clothes, having their faces painted, playing party games and having Healthy orange snacks to support William in his healthy eating diet. 

Do you have something orange that you could wear and spread awareness for PWS and donate a few pounds to such a worthy cause?

On the 23rd July many of Wills family and friends are taking part in a 12 mile walk called "One Small Step" to raise funds and awareness for research into Prader Willi Syndrome.  These walks take place all over the world to raise funds for PWS research.  All sponsors would be greatly appreciated and help us along!

Prader-Willi syndrome (often called PWS) is a complex medical condition that affects both males and females throughout their lives. People with PWS may need extra support with health and development and in the areas of education and work.

The support that so many of you have already given us as a family has been amazing. If you could please spare any money to support research into this syndrome to help us provide an even brighter future for our precious William and all the other people who are affected by this syndrome.

For those of you who know Wills I'm sure you'll agree that although he has Prader Willi Syndrome it certainly doesn't define him in anyway.  He's such an amazing little boy, just like his big brother James and I am so proud of them both.

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