R Lawrence

Shahed's Skydive for MLD (Metachromatic Leukodystrophy)

Fundraising for MLD Support UK
£2,471
raised of £1,500 target
Donations cannot currently be made to this page
Tandem Skydive, 20 April 2017
MLD Support UK

Verified by JustGiving

RCN 1150542
We support families and fund research to find a cure and raise awareness of MLD

Story

Hamzah is a 3-year old boy who suffers from a rare disease known as MLD ( Metachromatic Leukodystrophy ). 

MLD is a genetic disease which is terminal and only 1/40,000 children are affected with this.

Affected children have difficulty walking after first year of life. Symptoms also include; Muscle wasting and weakness, Muscle rigidity, Development delays, Progressive loss of vision leading to blindness, Convulsions, Impaired swallowing, Paralysis, Dementia and children may become Comatose.

Most children with this form of MLD, have a life expectancy of 5 years.

I have decided to do this skydive because I have always been afraid of heights. Absolutely terrified. And I feel if I can overcome my fear of heights by jumping 15,000ft out of a plane, I can somewhat overcome my fear of eventually losing Hamzah.

I will be producing a documentary for MLD awareness and with your help, I intend to help children across the world suffering from MLD before they lose their fighting battle.

So please help fundraise for this cause, we may not be able to change Hamzah's fate, but together we can help give other children like him a brighter future.


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Every person who contributes will recieve a special thanks in the credits of the Documentary.

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About the charity

MLD Support UK

Verified by JustGiving

RCN 1150542
MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). We support families affected by MLD, fund research into therapeutic procedures and, as it is a rare disease, provide information about MLD to ensure early diagnosis.

Donation summary

Total raised
£2,470.50
+ £353.88 Gift Aid
Online donations
£2,470.50
Offline donations
£0.00

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