About The British Porphyria Association
It aims to improve the understanding of Porphyria, by reaching out to patients, relatives, doctors and medical staff, etc. Early diagnosis is vital if we are to improve the quality of life for those affected by it. It also provides a social support system for sufferers and their families
http://wwwporphyria.org.uk
helpline@porphyria.org.uk_x
The British Porphyria Association Registered charity number 1089609
