ROHHAD Association
#GOMADJumpForROHHAD
This FUN social media challenge was an idea by Aaron Hunter(6) who has been diagnosed with ROHHAD. He would love all our supporters to do the challenge to help raise awareness and funds for research.
Story
This challenge is a fun way to help the charity, Aaron and children like him
The ROHHAD kids are battling daily to survive
YOU can Help A fun way to do that is to do the #GOMADJumpForROHHAD challenge and donate here today. Or simply text Jump29 £3.00 to 70070.
View Aarons challenge on youtube GOMADJumpForROHHAD
ROHHAD is an extremely rare Life Threatening and Life Limiting Condition, that affects Approx 100 children worldwide; meaning children have a 1 in 70 million chance of developing ROHHAD. It is an Orphan condition meaning no funding for medical research, very little understanding and that so few people are aware of it. It is a condition not restricted to one race or country, affecting children across the globe. ROHHAD is very complex and completely devastating to those affected because for now, without an identified cause, it is incurable.' Without research it is unlikely that the children will reach adulthood. The government sees them as to rare to find a cure. Please Help
