Sophie Clarke

david's page

Fundraising for Ichthyosis Support Group
£1,575
raised
Donations cannot currently be made to this page
Celebrating the wedding of david paige and sombat mansati, 12 April 2017
Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
We support everyone affected by ichthyosis to improve their quality of life

Story

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The Ichthyosis Support Group were founded by volunteers 15 years ago to help support families and individuals who have such severe disfiguring skin disease. Some children with severe ichthyosis do not even survive to school age. I  am currently chair of the ISG medical advisory board and have watched the charity slowly grow to the extent they can now provide small scientific grants to aid medical research. The genes for these rare conditions have all been discovered in the last 20 years and this gives the first real hope for a cure in the future. We would be so grateful if you feel you are able to make a donation. David and Sombat xxx

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About the charity

Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Donation summary

Total raised
£1,575.00
+ £343.75 Gift Aid
Online donations
£1,575.00
Offline donations
£0.00

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