Story
We are supporting two charities through the Extreme 2015, and this page allows you to donate to one of them, the Child Growth Foundation. For full details of the Extreme 2015 Challenge please visit our webpage and blog at Abbey Runners.
As many of you know, we have a personal connection with the Child Growth Foundation through our goddaughter, Emily. Emily was born in 2002 weighing just 3lbs 3oz and at 6 months old was diagnosed with Russell-Silver syndrome, a rare genetic growth disorder. Ongoing research into this syndrome has enabled various genetic faults to be pinpointed in relation to RSS, and in 2007, Emily tested positive to a methylation fault on the chromosome 11p15. Whilst this doesn't mean much to a non-geneticist, having a definite diagnosis was a huge relief to her family, and means that all future research into this syndrome can be carried out on a gene-specific basis, meaning that further research will help the lives of many affected children in the future.
The Child Growth Foundation has offered Emily's family much support and help over the past 12 years They help many families each year, either with getting diagnoses for their children or funding much-needed research, and also through organising an annual convention and putting affected families in touch with one another. The power of talking through a situation with someone else in the same boat should never be under-estimated.
So, please give generously and support our Extreme 2015 fundraising challenge!