Mark Devonald

Alison and Mike's Extreme 2015

Fundraising for Child Growth Foundation
£2,015
raised of £2,015 target
Donations cannot currently be made to this page
Alison and Mike's Extreme 2015, 1 January 2017
We fund medical research to help people with rare growth conditions

Story

We are supporting two charities through the Extreme 2015, and this page allows you to donate to one of them, the Child Growth Foundation. For full details of the Extreme 2015 Challenge please visit our webpage and blog at Abbey Runners.

As many of you know, we have a personal connection with the Child Growth Foundation through our goddaughter, Emily. Emily was born in 2002 weighing just 3lbs 3oz and at 6 months old was diagnosed with Russell-Silver syndrome, a rare genetic growth disorder. Ongoing research into this syndrome has enabled various genetic faults to be pinpointed in relation to RSS, and in 2007, Emily tested positive to a methylation fault on the chromosome 11p15. Whilst this doesn't mean much to a non-geneticist, having a definite diagnosis was a huge relief to her family, and means that all future research into this syndrome can be carried out on a gene-specific basis, meaning that further research will help the lives of many affected children in the future.

The Child Growth Foundation has offered Emily's family much support and help over the past 12 years They help many families each year, either with getting diagnoses for their children or funding much-needed research, and also through organising an annual convention and putting affected families in touch with one another. The power of talking through a situation with someone else in the same boat should never be under-estimated.

So, please give generously and support our Extreme 2015 fundraising challenge!

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About the charity

We offer support to children & their families, and adults who are diagnosed with a rare growth condition or who are undergoing diagnosis. Our members enjoy an annual convention, regular meet-ups, newsletters and online support. We fund research and help increase awareness of these conditions.

Donation summary

Total raised
£2,015.00
+ £398.92 Gift Aid
Online donations
£2,015.00
Offline donations
£0.00

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