Story
Alex is a 14 year old Ugandan boy . . .
. . . living in extreme poverty and suffering from severe cerebral palsy. He was born normally but as an infant contracted cerebral malaria which left him blind, unable to communicate, unable to sit up or care for himself or feed himself. and doubly incontinent. His parents died and he was left to the care of his grandmother. In addition to caring for Alex this elderly grandmother also cares for Dennis, aged 8 years, another orphaned grandchild who developed cerebral palsy as a result of birth trauma, suffering also from AIDS and epilepsy. The grandmother is devoted to these 2 boys. She lives in a small brick built home consisting of bare walls, earth floor, 3 tiny rooms and a few mats and bedding. This house however belongs to a niece. In May 2014 the niece informed Alex's grandmother that she was selling the home so that she could move to Kampala. Although she invited her elderly aunty to go with her she refused. Both boys are now cared for at Wellspring Children's Medical Center 3 days a week and she takes Dennis on a bord borda (motorbike taxi) to this Centre which is funded by Medcare. Here he receives physiotherapy which has greatly improved Dennis' ambulation and coordination. In addition his grandmother receives help both financially, through the MDI sponsorship scheme, and socially, providing both the grandmother, Alex and Dennis with interaction with other families struggling with disabilities. With the recent development of the physiotherapy sensory room Alex is also brought to the medical centre (again on a borda borda) for stimulation, and physiotherapy to try to relieve some of his strictures. Because of this assistance that the family are receiving, Alex's grandmother refuses to move away from her present location and would never leave the boys alone. She states that she wants to be buried alongside her grandsons when death comes. She owns a piece of land near to her present home and £3,000 is required to build a new home for her and the 2 boys. If this can be provided then the family can remain under the care of Wellspring, receive the benefits of their sponsorship and live together for their entire lifetime.