Story
Thanks for taking the time to visit my JustGiving page.
With so many charity events and activities going on, and with times tough, I feel almost uncomfortable to ask for help. But, here I am, begging for understanding and a small amount of your time. Not for me, but for an illness and charity I feel so strongly about.
It’s not until something touches you personally that you realise just how precious life is, how much the people in your life matter. It hurts like hell, but we have to try and find the positives.
My positive is this; if I can raise awareness of this awful disease, if I can help towards the research in to trying to find a cause and a cure, if I can get more people on the donor register, then there is my positive. Maybe then I won’t feel so helpless.
Pulmonary Fibrosis (PF) is a rare disease of the lungs that has no cure. It is still unclear as to what even causes it. It is believed that cells inside the lungs start to die, the body tries to repair this damage but causes scarring and hardening (fibrosis) of the delicate tissues. The more damage, the harder it becomes to breath and more pressure it puts on the lungs and heart.
For some, drugs can keep the disease stable. For others, the only hope is a lung transplant.
For my beautiful sister, Nicky, the cocktail of drugs are no longer working and a transplant is no longer an option. The disease has progressed too far and she has other complicated illnesses that make it just too risky to operate.
Please, please help me raise awareness. Even the smallest donation would help. If you can’t afford to donate, then knowing you have unselfishly subscribed to the donor register, telling your family you have done so, would be incredible. This is not an easy subject for some, I understand that, but it could make such a difference to others lives. To do so, use the link below:
https://www.organdonation.nhs.uk/how_to_become_a_donor/registration/consent.asp
Thank you x
******* EVENTS *******
Kick-starting off the fund-raising was the amazing Ray Partridge. Ray cycled an incredible 1000 miles from John O'Groats to Lands End between 28th May and 11th June in aid of Pulmonary Fibrosis for the British Lung Foundation. This was an immense personal challenge for Ray and I am honoured that he chose this charity, thank you Ray.
HADRIAN'S WALL
On September 13th a number of us will embark on a journey following the National trail for Hadrian's Wall in Northumberland. Some for the weekend, some for the odd day, other crazies will attempt the whole wall - all 84 miles of it, west to east coast. Training has started and we already have the blisters to prove it. I am so, so grateful to all my friends and family who wish to do this with me.
Meet the PF Pilgrims...
Lynne Snoding, Colin Stubbs, Kathryn Berry, Calum Meadows, Anna Jacobsson, Mandy Donneky, Mark Jackaman, Donna Mitchell, Katie Pett, Emma Barratt, Adam Cockley, Lawrence Osborne, Dave Simms, Collin Graham, Paul Harker, Ken Snoding, Graeme Ellis, Angie Kirtley.. and we may have a few more day walkers yet.
Please support everyone who will be taking personal time and money to do this incredible thing.
Thank you.
* All money will be directed to Pulmonary Fibrosis research through the British Lung Foundation *