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The people who unfortunately suffer with Cornelia de Lange syndrome have slow growth before and after birth, intellectual disability that is usually severe to profound, skeletal abnormalities involving the arms and hands, and distinctive facial features.  Although the exact incidence is unknown, Cornelia de Lange syndrome likely affects 1 in 10,000 to 30,000 newborns.

Losing Natalie has created a huge hole in mine and my families heart. She had an effect on everyone she met and Natalie will not be forgotten by any one of those people. Natalie will be forever be in our hearts and the Cornelia de Lange butterflies are spreading their wings for you. I love you, forever.

Please donate to the Cornelia de Lange syndrome UK in support of Natalie Brown who lost her battle on 10th April 2014. This will help everyone who is suffering with the syndrome and all the families who are fighting a constant battle.