Story
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8 Years ago my daughter was born 12 weeks premature and she developed Necrotising Enterocolitis (NEC), a life-threatening bowel condition which mainly affects premature babies. She had to undergo emergency surgery at less than 2 weeks old to remove two thirds of her large intestine followed by a long stay in hospital and a further operation a few months later. Luckily thanks to the treatment she received she has made a full recovery, however some are not as lucky as us.
Each year in the UK, around 3,000 babies develop this serious bowel problem and tragically around 35% of these babies die. Those who survive often develop long term health problems. The disease typically strikes without warning and by the time it is diagnosed, babies are often already extremely ill.
Babies who develop NEC can need emergency surgery to remove damaged parts of their intestines. This condition remains a threat to premature babies - improved diagnosis and treatment are urgently needed.
New research can help save lives.