Lee's Bupa Great South Run 2013 page

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£1,170
raised
Donations cannot currently be made to this page
Event: Bupa Great South Run 2013, on 27 October 2016
In memory of Anabelle Shepherd
The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of MPS diseases

Story

Thanks for taking the time to visit my JustGiving page.

As some of you may know our daughter, Anabelle was diagnosed with MPS 1 Hurlers Syndrome in March 2012. Sadly she passed of an infection on Christmas day of that year. Her story can be followed on www.lovableanabelle.blogspot.co.uk

The MPS Society is the only charity that offers support for families and children affected by the MPS range of rare diseases. They also help to privately fund research into the causes, effects and treatments of these life limiting diseases. In addition they are assisting financially with clincial trials of various treatments which will offer hope to children across our country. Research and clinical trials are continuing relying on private funds due to the rarity of these diseases. Some of the treatment that Anabelle had received was not around 10 years ago so your money will make a difference.

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About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides professional support to children, adults and families affected by MPS and related Lysosomal Storage Diseases and funds research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions.

Donation summary

Total raised
£1,170.00
+ £265.00 Gift Aid
Online donations
£1,170.00
Offline donations
£0.00

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