Williams Syndrome is a rare chromosome deletion which occurs at random and affects 1 in 20,000 in the UK., Rosie and Tom's eldest son Finley was born with WS and diagnosed at 9 months. He is now 4 years old.

Williams Syndrome brings many physical and mental challenges and is characterised by medical problems including cardiovascular disease, developmental delay and learning disabilities. These often occur alongside strong verbal skills (but with a lack of understanding), a very sociable personality and an affinity to music. 

The Williams Syndrome Foundation provides invaluable support and information to families, the guidelines, research and advice that the WSF provides helps families affected by WS feel more in control. Raising Finley to his full potential whilst managing his medical and developmental issues isn't easy! 

The WSF is run for parents by parents. There are no paid fundraisers and all funds go directly to research and welfare.

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