Julia jane

Toby's page

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£1,795
raised of £1,500 target
Donations cannot currently be made to this page
Long Exhausting Journey Over Great britain, 14 March 2017

Story

Toby is my youngest nephew.. he's 4 years old now, and is THE cutest button you've ever met...!.. despite the various challenges that he has already faced in his short life, he still wakes up and gives you the most splendiferous smile you've ever seen.

He was born with a rare chromosome disorder which meant that he had a club foot, has to wear a plaster jacket around his mid-section to correct spinal problems, as well as some heart issues too... but worst of all, he smiles almost all the time, so he can get away with whatever he wants, which just isn't fair...!!

Unique provide information and support to families affected by rare chromosome disorders, and one of the greatest achievements is to link together families with children that have the same or simliar missing chromosomes. there is more information at their website http://www.rarechromo.org/.

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About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome disorder. These lifelong disorders affect 1 in 200 live-born babies and those affected are often sick and severely disabled, unable to walk or talk. For more information see www.rarechromo.org

Donation summary

Total raised
£1,795.00
+ £212.50 Gift Aid
Online donations
£1,795.00
Offline donations
£0.00

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