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PMSF UK

We provide support in the UK to people with Phelan-McDermid Syndrome

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About PMSF UK

We provide support to people and their families in the UK who have Phelan-McDermid Syndrome (chromosome 22q13.3 deletion). This support is provided through information, therapies and financial grants, and by organising family days and get-togethers. Thank you for supporting PMSF UK.

info@pmsf.org.uk_x

PMSF UK Registered charity number 1157423

Donation message

"Sorry I can't make the ball Kathryn. Here's my ticket money! "

Jo Dawson-Gerrard donated

£50.00 + £12.50 Gift Aid

Donation message

"Sorry I can't come to the ball! Here's my donation for Charlie and his PMSF friends instead. Love Helen, Richard, Elliot and Edward X X X X "

Anonymous donated

£50.00 + £12.50 Gift Aid

Donation message

"In memory of Regina Kilfoyle"

Jennifer donated

£50.00 + £0.00 Gift Aid

Donation message

"In memory of Regina Kilfoyle"

Barbara donated

£50.00 + £12.50 Gift Aid

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"Donating on world rare disease day for a very special little boy with phelen mcdermid sydrome - keep up the good work Harrison 😄 💙"

Louise donated

£10.00 + £2.50 Gift Aid

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"Christmas donation from Rosalie Atherton... Thank you! x"

Giles and Penny Bradley donated

£50.00 + £12.50 Gift Aid

Giles Bradley has raised $3,115.21 so far

I'm We are running the Great North Run for Giles Bradley because we love Charlie Kay, our nephew / page boy

88 Supporters

Victoria Feddersen has raised $2,966.83 so far

I'm I'm wearing my Phelan Lucky tee for 365 days for Victoria Feddersen because I want to raise as much awareness of P-MS as poss.

81 Supporters

rebecca taylor has raised $2,100.69 so far

I'm Hauling ourselves around the London British 10k for rebecca taylor because It's the least we can do for such a great cause!

68 Supporters

Carrie Robinson has raised $683.62 so far

Carrie's page

17 Supporters

Allianz Global Assistance has raised $463.46 so far

Allianz's Dress down June 2016

1 Supporters

wesley ratcliff has raised $423.97 so far

wesley's Pms footgolf event

2 Supporters