As many of you know, we lost our loving husband, father, brother, uncle, and friend after a long battle with Cystic Fibrosis in November 2010. Tony's fight with CF has educated us on the challenges that thousands of people across the UK and Ireland face on a daily basis with this disease and we want to do something to help.

In Tony's memory we have organised many different events and activities to help raise money for Queen's University Belfast who are currenlty conducting research to develop ground breaking therapies for this condition.  

 

Here is what we have done so far:

BDO Golf tournament (October 2012)

Quiz night (November 2012)

Coffee morning in Naas (May 2013)

Belfast Royal Academy Sponsored walk (May 2013)

 

Upcoming events

Coffee morning (16th November 2013)

The Starlight Ball (December 2014)

 

About Cystic Fibrosis

Cystic fibrosis (CF) is the most common fatal genetic disorder in North Western European populations and is particularly common in Ireland.

Although significant advances have been made in the past twenty years to treat the symptoms of CF, a therapy that treats the underlying consequences of the gene defect is urgently required.

 

What QUB are doing to help

In the past year a drug called Kalydeco has been licensed in Europe and the USA for the treatment of a small group of people with cystic fibrosis who carry a particular mutation called G551D (the "Celtic" gene). The drug is a significant breakthrough not only for those with this specifc gene, but also for all other cystic fibrosis sufferers as it indicates that the basic defect in cystic fibrosis can be treated.

At QUB, they have developed a Centre for drug development, formulation and testing. Internationally renowned scientists and clinicians are developing new drugs formulated in such a way that they can be successfully delivered to people with cystic fibrosis and tested in early phase clinical trials.

This research will develop and test new therapies for people with Cystic fibrosis in order to improve their quality of life and reduce the number of deaths from the condition.

If you would like to know more about this research please click on the link below:

http://www.qub.ac.uk/research-centres/CentreforInfectionandImmunity/Aboutus/NewsandEvents/

We appreciate all of your donations and support. We hope that this research will drastically improve the lives of those people living with Cystic fibrosis in the UK and Ireland. At the same time we hope to keep alive the memory of a very warm, kind-hearted and humourous man who is never far from our thoughts.

Thanks again,

The Simpson family.