Megan Duffy

In memory of Sienna Patel

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£3,953
raised of £1,000 target
Donations cannot currently be made to this page
In memory of Sienna Patel

Story

Thanks for taking the time to visit our JustGiving page.

Our little girl, Sienna, was born on the 30th of June 2011.  6 months later, we found out that she had a rare genetic disorder that, we would ultimately learn, would impact upon every aspect of her being.

Despite her condition, Sienna was a beautiful, fun loving girl and regardless of how much she might have been suffering, always had a smile and a cuddle for everyone - even complete strangers!

There is very little information available out there for rare chromosome disorders, yet, 1 in 200 babies are affected by a similar condition to that Sienna suffered from.

We lost Sienna on the 2nd of April and we are still waiting for the post mortem results.  We do not believe her passing to be related to her disorder, however, Unique provided us with plenty of information and support when times were tough.

Please donate whatever you can afford - rest assured that Unique will put it to good use in helping children similar to Sienna.

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About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome disorder. These lifelong disorders affect 1 in 200 live-born babies and those affected are often sick and severely disabled, unable to walk or talk. For more information see www.rarechromo.org

Donation summary

Total raised
£3,952.91
+ £470.25 Gift Aid
Online donations
£3,952.91
Offline donations
£0.00

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