Story
WHAT IS ENDO? [Endometriosis is a condition in which tissue similar to the lining inside the uterus (called “the endometrium”), is found outside the uterus, where it induces a chronic inflammatory reaction that may result in scar tissue. It is primarily found on the pelvic peritoneum, on the ovaries, in the recto-vaginal septum, on the bladder, and bowel.]
""I would like to be a voice and proof that despite this diagnosis there is hope and happy endings. YOU can create that yourself. If I could, so can you."
"Raising awareness about endometriosis is a way of passing on the miracles I have been blessed with."
"It's a disease that impacts your life but doesn’t have to mean your life is over. It’s actually just the beginning."
THANK YOU Any donation, big, small or teeny tiny is much appreciated, thank you. If you feel you are not able to donate or just not interested I appreciate that you have taken the time to read this far. Awareness is a big step in this disease. Endometriosis. There is hope! Amongst the people you know probably 1 out 10 suffer or know someone who has endometriosis. And I hope it’s not you. If it is - You’ve got this! Big hug.
WHAT IS MY STORY (THE SHORT VERSION) My endo journey started and was discovered when I went off the pill and was trying to get pregnant in 2006. I probably suffered from it earlier, but didn't understand that it was endometriosis. I am now 38 years old, currently living in Sweden. My endo experience was when we lived in Lanzarote, Canary Islands. I ended up going through a laparoscopic procedure, where my doctor removed a huge cyst; that had pulled my one ovary over to the other ovary. VERY painful. The doctor I had was a true blessing. He kept my tubes (said they looked like chorizos) and only cut away some of my ovary. He diagnosed me with endo 9. Getting pregnant natural was medically not possible. But.... The human body is amazing and the female body even more so. He told me that.
"Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it. Make it your friend and ally, not your enemy. This will miraculously transform your whole life. -Eckhart Tolle”
3 IVF treatments later.... nothing! The IVF doctors could not understand why my gyn hadn't taken away both ovaries and tubes, as they were of no use.
"Serenity comes when you trade expectations for acceptance."
So. Yoga, lots of it! My husband massaged my feet regularly - zone therapy massage - I cut out gluten and lactose... but most of all I accepted. Acceptance is powerful! And this is the key. Accepting a life without children. Accepting the endo and trying to find a painfree way to live WITH it. And then it happened. I got pregnant. Against all odds. Really against all odds. Naturally! The doctor said if we wanted a second one do it quick. A year later our second son arrived. And a VERY TIRED mother.
Since then I have not had any symptoms. Our children are 6 and 7. I stopped taking the pill 1 year ago. Still no endo. Running and yoga is my medicine. Life is a miracle and our boys are proof. But even more so, the human body is amazing. Awareness, stories of hope and encouragement and living a life with active and outdoors - this I believe is a way to help other females accepting and overcoming the dark and painful side of endometriosis.
WHY 100 KM Because I’m crazy enough to think I can. Through my whole life I have been told I’m impatient and impulsive. Running 100km you need everything but impatient and impulsive. What if I could turn the power and energy that impatient and impulsive gives me to an asset rather than a not so charming character trait. Why would you run 100km?
“I’m going to succeed because I am crazy enough to think I can.”
WHY FOR ENDOMETRIOSIS I have run many kilometers (but never 100km) and I know that when you’re out there and especially on your own wondering what was I thinking you need reminders. Something to hang onto, even if it’s a thin thin line. What is your primal power? The one thing you know will get you through when push comes to shove. For me its our children. They remind me about the wonders and miracles of life, that anything is possible. The love for your children is so overwhelming and so powerful. Writing this makes my cry. That’s how strong I feel about it. It’s good tears! Happy tears. They are miracles. I was diagnosed with endometriosis. If I can raise awareness about endometriosis its a way of passing on the miracles I have been blessed with. Endometriosis is something that impacts your life but doesn’t have to mean your life is over. It’s actually just the beginning.
“Never give up on a dream just because of the time it will take to accomplish it.”
THANK YOU Any donation, big, small or teeny tiny is much appreciated, thank you. If you feel you are not able to donate or just not interested I appreciate that you have taken the time to read this far. Awareness is a big step in this disease. Endometriosis. There is hope! Amongst the people you know probably 1 out 10 suffer or know someone who has endometriosis. And I hope its not you. If it is. You’ve got this! Big hug.