Seraphina is an amazing, funny, talented girl who has Rett Syndrome. Although this provides many daily challenges for Seraphina and her family she is a fighter and has a tenacity to get the most from each day.

One of the challenges Seraphina faces daily is communicating her thoughts and feelings so that others can comprehend them. At the moment she is reliant on a small number of good communicators that know her well to have a well informed guess at what she wants to say and then give her options to find out exactly what she wants. This is done by using the left and right hands and adding a phrase or question to each i.e.  do you want to go in the garden (Seraphina point to speakers left hand) do you want to listen to music (point to right hand) then for music give selection of songs 2 at a time till getting to the right one if she choose music.

Many other forms of communication aid have been tried over the years but Seraphina is reluctant to use them, seemingly because of the effort it takes to co-ordinate choosing the right symbols and getting the motor planning together to point to/pick up the symbol on paper or small screen in a timely manner. The use of eye gaze means that when Seraphina is not having a good time using motor skills she can still spontaneously use her eyes to speak using the grids available (see picture at top)

Seraphina has been fortunate to have had a loan of a Tobbi Eye Gaze for a few weeks and it has made a big difference to being able to spend time interacting with family and friends. We are hoping with your help, and the help of Sequal Trust to be able to get her one of her own very soon as she will miss having the equipment until we reach our funding goal.

If every person reading this gave only £1 and asked 1 more person to do the same we will reach our goal very quickly (big smile). Please help us if you can. If not you are welcome to follow our progress and let others know about Seraphina's story.

Watch out for updates over the coming weeks

Julie

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