joanna russell

Supporting-CDKL5 UK

Fundraising for CDKL5 UK
£1,446
raised
Donations cannot currently be made to this page
CDKL5 UK, 16 January 2017
CDKL5 UK

Verified by JustGiving

RCN 1149099
We are fighting to give our kids a chance to live long, happy and healthy lives

Story

Many thanks for taking the time to visit our JustGiving page. If you've got this far, you will know that we are raising funds to support research into CDKL5, which is the genetic condition that affects our daughter Ellie. 

This is a new page that donates directly to CDKL5 UK. Our previous page used to donate via Rett UK and we would like to thank all those who previously donated. We raised a total of £937 and we are very grateful.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

Many thanks again for your support     www.supporting-cdkl5.co.uk

 

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About the charity

CDKL5 UK

Verified by JustGiving

RCN 1149099
CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. We are a UK charity aiming to support affected families and to raise funds for research

Donation summary

Total raised
£1,446.00
+ £267.75 Gift Aid
Online donations
£1,446.00
Offline donations
£0.00

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