ursula's

Ursula Doyle is raising money for Stickler Syndrome Support Group
£1,698
raised of £1,350 target
Donations cannot currently be made to this page

Virgin London Marathon 2016 · 24 April 2017 ·

Story

I would like to support this non-funded charity 'Stickler Syndrome' as it only relies on donations. It can affect all ages, 1 in 10,000, but professionals believe that it is higher. Some symptoms are: high myopia, unexplained retinal detachments, early cataracts, a cleft or high-arched palate, hypermobile and/or painful joints, hearing loss. This charity helps families, individuals with workshops, other events and professional help about this condition.
So please dig into your pockets and help me succeed in helping this charity! Thank you

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About the charity

Stickler Syndrome Support Group aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis for adults and children with the condition to help preserve vision, particularly the prevention of blindness in children and adults.

Donation summary

Total
£1,698.00
+ £71.25 Gift Aid
Online
£1,698.00
Offline
£0.00

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