About Amy and Friends
Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.
http://www.amyandfriends.org/
jayneh.hughes@yahoo.com_x
Amy and Friends Registered charity number 1119746
