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Sturge Weber UK is a volunteer run support group for families and adult sufferers affected by Sturge-Weber syndrome, a rare neurological disorder. A registered charity, it was launched in 1990 as a independent group by the disability support organisation Contact a Family. www.sturgeweber.org.uk
www.sturgeweber.org.uk
support@sturgeweber.org.uk_x
Sturge Weber UK Registered charity number 1016688
"For my nephew Jacob Bleasdale x"
Susan Heaton donated
£20.00 + £5.00 Gift Aid
"Money raised from selling photo calendars to family and friends "
Peter donated
£250.00 + £62.50 Gift Aid
"Instead of sending Christmas Cards this year we wanted to make a donation to a wonderful charity. Keep up the amazing work. Merry Christmas to you all!"
Dyan, Daniel, Lincoln and baby Archer xx donated
"Merry Christmas! "
Samantha Barnes donated
"Merry Christmas on behalf of my family and Ben xx"
Rachel donated
"I am donating to honour Adam Rafferty."
Janice Dherty donated
$100.00 + $0.00 Gift Aid
Nicola Colenso has raised $12,409.83 so far
I'm Raising Awareness for Sturge Weber Syndrome. for Nicola Colenso because Sturge Weber is not contagious but Awareness is.
Jeanette Tinsley has raised $5,514.15 so far
I'm Getting my head shaved for Jeanette Tinsley because its a cause very close to my heart.
Richard Murray has raised $4,199.57 so far
Supporting Yasmin !
Litz Butcher has raised $3,829.58 so far
In memory of Sian Probert April 7th 1984 - December 9th 2014, sufferer of Sturge Weber Syndrome
Andrew Blacklock has raised $3,651.23 so far
I'm Taking on the London to Paris ride in April for Andrew Blacklock because To help raise crucial funds for this rare syndrome
John Gardiner has raised $2,646.69 so far
John's page
