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CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. We are a UK charity aiming to support affected families and to raise funds for research
www.curecdkl5.org
info@cdkl5uk.org_x
CDKL5 UK Registered charity number 1149099
"Lovely London Cabbie donated our fare to our charity :) "
Adrian and Carol-Anne donated
£13.00 + £3.25 Gift Aid
"Money raised by the staff at The English Experience School of English. Thanks everyone!"
Carol Syder donated
£240.00 + £0.00 Gift Aid
"Donating in memory of Charis Hemmings, rest in peace sweet angel. Dress down day at the Contact Centre - Salford City Council"
Natalie Dey donated
£30.00 + £7.50 Gift Aid
"Thankyou for all the he merchandise"
Anonymous donated
£30.00 + £0.00 Gift Aid
"Wishing you all the best and have a safe journey. A very worthy cause."
Stephen Tomlinson donated
£10.00 + £2.50 Gift Aid
"Good luck Mark xx"
Jeanette Molloy donated
£10.00 + £0.00 Gift Aid
Nick Searle has raised $5,148.10 so far
I'm Running, swimming, kayaking and cycling hilly Bude for Nick Searle because They provide support to families like ours
Christine Gualtieri Jasulavic has raised $2,185.34 so far
I'm participating in the 5k for 50 days for Christine Gualtieri Jasulavic because I love my daughter.
Martyn Newey has raised $1,831.28 so far
Supporting-CDKL5 UK
Sarah Meyers has raised $1,418.42 so far
I'm doing 5km a day for 50 days for Sarah Meyers because it will raise valuable funds - and awareness!
Fleur Gibbs has raised $1,393.09 so far
I'm shaving off all my hair for Fleur Gibbs because I want to help fund a cure for CDKL5
Tom Snelgrove has raised $1,080.09 so far
I'm Swansea half marathon for Tom Snelgrove because To raise money for CDKL5
